Coming of age with Crouzon syndrome – with Ariel Henley

Coming of age with Crouzon syndrome – with Ariel Henley

Author: Carolyn Kiel March 28, 2022 Duration: 36:10

As a child, Ariel Henley's face was compared to a Picasso painting.

This horrifying comment didn't come from a schoolyard bully. It was written in a magazine article about Ariel and her experience growing up with Crouzon syndrome, a congenital condition that affects the shape of her face.

From that day forward, Ariel was determined to tell her story. She transformed that insult into the title of her new memoir, "A Face for Picasso."

Tune into my latest episode to hear Ariel talk about her book, as well as:

  • Her story of growing up with Crouzon syndrome
  • The pain and harassment she faced
  • Finding self-acceptance
  • Her advocacy for face equality and authentic media representation of people with facial differences and other disabilities

To find out more about Ariel and her work, visit her website at www.arielhenley.com and order her memoir, "A Face for Picasso."

 

Watch the video of this interview on YouTube!

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Click here for the episode transcript.

This episode also features a promo of the Art Heals All Wounds podcast.

*Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations.*

 


Hosted by Carolyn Kiel, Beyond 6 Seconds: Neurodiversity stories from neurodivergent people moves past the snap judgments that so often define how neurodivergent people are perceived. Each conversation here is an invitation to listen deeply, exploring the nuanced realities of entrepreneurs, artists, advocates, and other neurodivergent individuals as they share their own experiences in their own words. You’ll hear personal accounts that challenge stereotypes, not through abstract arguments, but through the vivid details of lived experience-the unique pathways to creativity, the challenges navigated in work and relationships, and the personal definitions of success and well-being. This podcast creates a space where identity is explored with authenticity, highlighting the strengths and perspectives that arise from thinking differently. Tuning in means connecting with stories that are as diverse and dynamic as the neurodivergent community itself, offering genuine insight into mental health, societal norms, and the richness of human cognition. Carolyn guides these discussions with a focus on depth and connection, ensuring every episode goes far beneath the surface to celebrate the vibrance of neurodiversity.
Author: Language: English Episodes: 100

Beyond 6 Seconds: Neurodiversity stories from neurodivergent people
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