Tourette Syndrome advocacy – with Jhonelle Bean

Tourette Syndrome advocacy – with Jhonelle Bean

Author: Carolyn Kiel October 2, 2023 Duration: 29:01

Jhonelle Bean is a 28-year-old disability advocate living with Tourette Syndrome and PTSD. Jhonelle shares her experience with Tourette Syndrome through social media to educate others and help destigmatize the condition, especially within communities of color. She has also created a community called "For The Advocates," where other disability advocates can find a place to relate and get support and resources from each other.

During this episode, you will hear Jhonelle talk about:

  • Her first tics in childhood and adolescence, and the reactions of the people around her 
  • Why it took so long for her to get a Tourette's diagnosis
  • How she decided to become a Tourette's advocate online 
  • Some common misconceptions about Tourette's  
  • Her advocacy about Tourette's and communities of color
  • Why she created the "For The Advocates" community

Follow Jhonelle on Facebook, Instagram, TikTok, YouTube and Twitter.
Follow For The Advocates on Instagram.

Watch the video of this interview on YouTube.

Read the episode transcript.

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*Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations.*


Hosted by Carolyn Kiel, Beyond 6 Seconds: Neurodiversity stories from neurodivergent people moves past the snap judgments that so often define how neurodivergent people are perceived. Each conversation here is an invitation to listen deeply, exploring the nuanced realities of entrepreneurs, artists, advocates, and other neurodivergent individuals as they share their own experiences in their own words. You’ll hear personal accounts that challenge stereotypes, not through abstract arguments, but through the vivid details of lived experience-the unique pathways to creativity, the challenges navigated in work and relationships, and the personal definitions of success and well-being. This podcast creates a space where identity is explored with authenticity, highlighting the strengths and perspectives that arise from thinking differently. Tuning in means connecting with stories that are as diverse and dynamic as the neurodivergent community itself, offering genuine insight into mental health, societal norms, and the richness of human cognition. Carolyn guides these discussions with a focus on depth and connection, ensuring every episode goes far beneath the surface to celebrate the vibrance of neurodiversity.
Author: Language: English Episodes: 100

Beyond 6 Seconds: Neurodiversity stories from neurodivergent people
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