Tourette syndrome community and research - with Dr. Daniel P. Jones

Tourette syndrome community and research - with Dr. Daniel P. Jones

Author: Carolyn Kiel May 10, 2025 Duration: 37:44

Dr. Daniel P. Jones is a Creative Practitioner, Disability Scholar, and Postdoctoral Research Associate at the University of Sheffield in the UK. Daniel specializes in inclusive research methodologies, focusing on the embodied experiences of public spaces, kinship, and solidarity within Tourette syndrome communities. As someone who has lived experience of Tourette syndrome himself, he has been actively engaged in community facilitation and Tourette syndrome activism in the UK for over a decade. 

During this episode, you will hear Daniel talk about:

  • How he realized he had Tourette syndrome – years after he had been diagnosed
  • What was it like for him growing up with Tourette's in a religious household
  • How his PhD thesis research focuses on the experiences that adults with Tourette's have in both public physical spaces and digital spaces
  • What he learned about how the experiences of BIPOC and queer people with Tourette's are different in these spaces
  • His work to lead and promote inclusive research 

Follow Daniel on Bluesky: @danielpjones.bsky.social
Visit Daniel's website: DanielPJones.com

Watch the video of this interview on YouTube.

Read the episode transcript.

Follow the Beyond 6 Seconds podcast in your favorite podcast player.

Subscribe to the FREE Beyond 6 Seconds newsletter for early access to new episodes.

Support or sponsor this podcast at BuyMeACoffee.com/Beyond6Seconds!

*Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations. These episodes are for informational purposes only and do not substitute for professional medical advice. Consult a medical professional or healthcare provider if you are seeking medical advice, diagnoses, or treatment.*


Hosted by Carolyn Kiel, Beyond 6 Seconds: Neurodiversity stories from neurodivergent people moves past the snap judgments that so often define how neurodivergent people are perceived. Each conversation here is an invitation to listen deeply, exploring the nuanced realities of entrepreneurs, artists, advocates, and other neurodivergent individuals as they share their own experiences in their own words. You’ll hear personal accounts that challenge stereotypes, not through abstract arguments, but through the vivid details of lived experience-the unique pathways to creativity, the challenges navigated in work and relationships, and the personal definitions of success and well-being. This podcast creates a space where identity is explored with authenticity, highlighting the strengths and perspectives that arise from thinking differently. Tuning in means connecting with stories that are as diverse and dynamic as the neurodivergent community itself, offering genuine insight into mental health, societal norms, and the richness of human cognition. Carolyn guides these discussions with a focus on depth and connection, ensuring every episode goes far beneath the surface to celebrate the vibrance of neurodiversity.
Author: Language: English Episodes: 100

Beyond 6 Seconds: Neurodiversity stories from neurodivergent people
Podcast Episodes
Connecting disabled leaders and advocates – with Max Barrows [not-audio_url] [/not-audio_url]

Duration: 29:38
Max Barrows is an award-winning disability rights leader and advocate based in Vermont. As the Outreach Director for Green Mountain Self-Advocates, Max mentors people with developmental disabilities to speak up for thems…
Fashion model & artist with Down syndrome - Sania Khimji [not-audio_url] [/not-audio_url]

Duration: 8:41
Sania Khimji is an accomplished artist, model, influencer, and international beauty pageant winner based in India who continues to redefine boundaries and inspire inclusivity in every space she enters. Living with Down s…
Living with Dyscalculia – with Ivy Rizzo [not-audio_url] [/not-audio_url]

Duration: 42:59
Psychotherapist Ivy Rizzo has a master's degree, speaks multiple languages, and owns her own business... but she struggles with doing basic math, remembering important dates, and recalling events in chronological order.…
Schizoaffective disorder – with Sonido Reyes [not-audio_url] [/not-audio_url]

Duration: 27:12
Sonido Reyes is an award-winning and bestselling author who is best known for tackling difficult topics through a hopeful lens. They write stories celebrating their own queer and Mexican identities, including The Lesbian…
Neurodivergent communication differences – with Patti Kasper [not-audio_url] [/not-audio_url]

Duration: 47:36
This episode is a special collaboration between Beyond 6 Seconds and the Living with FASD podcast hosted by Patti Kasper. Fetal alcohol spectrum disorders (FASD) are lifelong conditions caused by prenatal alcohol exposur…
Disability Community for Democracy – with Nieta Greene [not-audio_url] [/not-audio_url]

Duration: 55:09
Nieta Greene is the Chief Executive Officer and Founder of Disability Community for Democracy, Inc., an organization focused on safeguarding the rights of individuals within the disability community and providing a platf…
2025 year-end episode [not-audio_url] [/not-audio_url]

Duration: 12:12
In this year-end solo episode, I celebrate some big milestones that Beyond 6 Seconds achieved in 2025, highlight the variety of topics that my guests and I discussed on my podcast, and share what podcasting-related thing…