75% of the World Lacks Treatment: The Global Hemophilia Crisis | Save One Life

75% of the World Lacks Treatment: The Global Hemophilia Crisis | Save One Life

Author: Jonathan James April 17, 2026 Duration: 21:45
A child with hemophilia should not have to live in constant pain because of where they were born—but for much of the world, that is still reality. In this episode, we sit down with Cindy Komar of Save One Life on World Hemophilia Day to discuss the global treatment gap and what “access to care” really looks like for families choosing between basic needs and life-saving treatment. We discuss: • The Global Hemophilia Treatment Gap and Why 75% Remain Undiagnosed or Untreated • Differences Bet...

Within the often overwhelming landscape of health and wellness, a distinct voice emerges, focusing on the lived experiences behind complex diagnoses. Hope Charries centers on honest conversations about bleeding disorders, rare diseases, and chronic illnesses, moving beyond clinical terminology to explore the human stories at their core. Each episode delves into the multifaceted reality of managing a long-term condition, where discussions might touch on the mental resilience required, the practical business of navigating healthcare systems, and the personal pursuit of fitness within individual limits. This podcast recognizes that health is not a single category but an intersection of medicine, personal well-being, and community support. You’ll hear from patients, caregivers, medical professionals, and advocates within the non-profit sector, all sharing insights that are as much about practical strategy as they are about finding strength. The dialogue is grounded in authenticity, offering listeners a sense of connection and understanding that can be hard to find elsewhere. Tuning in provides a space where the challenges are acknowledged without sugarcoating, yet the overarching narrative is one of shared knowledge and collective perseverance, making this an essential listen for anyone touched by these conditions.
Author: Language: en-us Episodes: 35

Hope Charities
Podcast Episodes
Healthcare in Crisis: The Truth About PBMs with Dr. Madelaine Feldman [not-audio_url] [/not-audio_url]

Duration: 1:09:04
Dr. Mattie Feldman, rheumatologist and healthcare policy expert, exposes how Pharmacy Benefit Managers have evolved from administrative entities into powerful forces that control medication access, often prioritizing pro…
Women with Bleeding Disorders: Empathy and Innovation in Patient Care [not-audio_url] [/not-audio_url]

Duration: 1:14:21
This episode focuses on the often-overlooked experiences of women with bleeding disorders. Dr. Akshat Jain discusses the importance of advocacy, the need for gender-sensitive healthcare approaches, and how quality of lif…
Dads helping daughters with hemophilia [not-audio_url] [/not-audio_url]

Duration: 1:24:49
Ivan Giron helped advocate for his daughter Naomi to gain a diagnosis and ongoing treatment after learning more about women having a bleeding disorder. After Ivan realized that his daughter was having abnormal bleeding d…