Misdiagnosed for 26 Years: Nandini Pethe on Living with Moderate Hemophilia

Misdiagnosed for 26 Years: Nandini Pethe on Living with Moderate Hemophilia

Author: Jonathan James February 27, 2026 Duration: 51:58
For 26 years, Nandini Pethe was misdiagnosed before learning she was living with moderate hemophilia. In this episode, she shares her journey from unexplained bruising in India to discovering factor VIII levels around 3%—and how the right diagnosis, the right team, and the right data changed her life. We discuss: • Early Symptoms and Misdiagnosis as von Willebrand Disease • A Locked Knee at 26 and First Effective Factor Infusions • Severe Joint Damage and Learning Bleed Pain vs. Arthritis P...

Within the often overwhelming landscape of health and wellness, a distinct voice emerges, focusing on the lived experiences behind complex diagnoses. Hope Charries centers on honest conversations about bleeding disorders, rare diseases, and chronic illnesses, moving beyond clinical terminology to explore the human stories at their core. Each episode delves into the multifaceted reality of managing a long-term condition, where discussions might touch on the mental resilience required, the practical business of navigating healthcare systems, and the personal pursuit of fitness within individual limits. This podcast recognizes that health is not a single category but an intersection of medicine, personal well-being, and community support. You’ll hear from patients, caregivers, medical professionals, and advocates within the non-profit sector, all sharing insights that are as much about practical strategy as they are about finding strength. The dialogue is grounded in authenticity, offering listeners a sense of connection and understanding that can be hard to find elsewhere. Tuning in provides a space where the challenges are acknowledged without sugarcoating, yet the overarching narrative is one of shared knowledge and collective perseverance, making this an essential listen for anyone touched by these conditions.
Author: Language: en-us Episodes: 29

Hope Charities
Podcast Episodes
Dads helping daughters with hemophilia [not-audio_url] [/not-audio_url]

Duration: 1:24:49
Ivan Giron helped advocate for his daughter Naomi to gain a diagnosis and ongoing treatment after learning more about women having a bleeding disorder. After Ivan realized that his daughter was having abnormal bleeding d…
Inside HOPE: A behind the scenes look at the second half of 2023 [not-audio_url] [/not-audio_url]

Duration: 1:15:34
In this podcast Jonathan James discusses upcoming event plans and patient resources with Joe Ferguson, Tesia Nagorka, and Suzi Cannon. Registration for upcoming events can be found on our website at www.hope-charities.or…