Autism, Advocacy and the Power of a Medical ID Bracelet

Autism, Advocacy and the Power of a Medical ID Bracelet

Author: Katie Taylor, Certified Child Life Specialist November 19, 2025 Duration: 58:14

Tara Cohen opens up about her son Will's autism diagnosis and how it transformed her family and career. From navigating meltdowns to discovering AAC as a communication lifeline, Tara shares her honest reflections on parenting, resilience, and hope. What began as a search for a medical ID bracelet led to a career at Lauren's Hope—where she now helps other families feel safe and supported. This heartfelt episode reminds caregivers that advocacy grows from love and that even small acts of compassion can make a life-changing difference.

 Timestamps

  • 00:00 – Introduction

  • 03:10 – Early diagnosis and emotions

  • 07:45 – Advocacy and ESE Pre-K

  • 12:30 – Discovering Lauren's Hope

  • 18:40 – Communication with AAC

  • 25:15 – Managing epilepsy

  • 31:00 – Finding silver linings

  • 37:00 – Advice for caregivers

Resources Mentioned

Child Life On Call Resources

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Links and Resources:

  • 85% of users report high satisfaction, appreciating the SupportSpot app's comprehensive resources and user-friendly interface.
  • 92%  of parent users say the SupportSpot app's helped them understand medical procedures and treatment better.
  • 80% of parents believe the SupportSpot app's has contributed to better health outcomes for their child.
  • 73% of parent users believe the SupportSpot app's has made them feel more empowered to advocate for their child in healthcare

Learn more here.

Meet the host: 

Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside.

Instagram.com/childlifeoncall

 

The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child are experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided.

Facebook.com/childlifeoncall

linkedin.com/in/kfdonovan

 


Hosted by Katie Taylor, a Certified Child Life Specialist, Inside the Children's Hospital is a quiet space for the often unspoken journey of pediatric illness. This podcast moves beyond the clinical to explore the human heart of the hospital, offering conversations that feel more like a shared cup of coffee in a waiting room than a formal interview. You'll hear directly from parents and caregivers who articulate the complex mix of fear, resilience, and love they experience, while pediatric nurses, doctors, and therapists provide their unique professional perspectives on fostering healing and normalcy. The discussions naturally delve into the practicalities of family life disrupted, the emotional weight carried by all involved, and the small, profound moments of hope that sustain people. It’s a resource for anyone connected to a child’s health challenge, whether you're a family member seeking solidarity, a friend looking to understand, or simply someone interested in the intersection of medicine and humanity. Each episode aims to validate the listener's own feelings, whether they are in the midst of a crisis or reflecting on one, by presenting these authentic narratives without sugarcoating yet always with profound compassion. Tune in to find a sense of community and a deeper appreciation for the delicate, powerful work happening within those walls.
Author: Language: English Episodes: 50

Inside the Children's Hospital
Podcast Episodes
Welcome to Inside the Children's Hospital: What Listeners Can Expect [not-audio_url] [/not-audio_url]

Duration: 1:31
If your child is facing a diagnosis, procedure, or hospitalization — you're not alone. Inside the Children's Hospital brings you real stories from parents who've walked this path. Not medical advice, but the kind of hone…
When Your Baby is Diagnosed with Type 1 Diabetes: Marlee's Story [not-audio_url] [/not-audio_url]

Duration: 33:54
"My baby went from fussy to lifeless in hours—by the time we reached the PICU, they said he might have had six hours to live." In this episode, TikTok Influencer and Medical Mom Marlee Brandon, a pediatric speech-languag…
Brain Surgery for Drug-Resistant Epilepsy: Managing Infantile Spasms [not-audio_url] [/not-audio_url]

Duration: 46:14
Join us for an incredibly candid and informative conversation with Audrey Vernick, a passionate advocate and the Director of Patient and Family Advocacy for the Pediatric Epilepsy Surgery Alliance. Audrey shares the powe…
Speech Therapy at Home: Expert Tips to Help Your Child Communicate [not-audio_url] [/not-audio_url]

Duration: 29:20
"The excitement that the kids feel when they are seeing you... and they know today's session with Ms. Luba and they can't wait to see you." - Luba Kaplan When a child enters the medical system, parents often meet many sp…
Type 1 Diabetes: Finding Community and Humor After Diagnosis [not-audio_url] [/not-audio_url]

Duration: 35:44
When Stacey's toddler was diagnosed with Type 1 diabetes, her family's world turned upside down. In this episode, she shares the early warning signs, the struggle of those first two weeks of injections, and how humor and…
NICU Stay, Down Syndrome, and Infant Loss: A Grief Journey [not-audio_url] [/not-audio_url]

Duration: 39:45
In this incredibly personal and moving episode, we sit down with Teejay and Jon, the authors of the gentle children's book Clemence, to share the full, raw story of their daughter, Nadiya. Their journey began with an une…