Meningitis in Children: When a Mother's Instinct Led to Life-Saving Answers

Meningitis in Children: When a Mother's Instinct Led to Life-Saving Answers

Author: Katie Taylor, Certified Child Life Specialist April 22, 2026 Duration: 51:25

What happens when your child seems sick, but everything keeps coming back normal?

For a lot of parents, the scariest part isn't the diagnosis. It's the not knowing. It's being told everything looks fine when your gut is telling you something is off.

This week, Katie sits down with Kayleigh, a medical assistant and mom of three, to share the story of her daughter Kanessa. Almost a year after a freak eye injury that seemed to heal, Kanessa suddenly got sick. At first, it looked like a simple virus. But within days, things escalated fast.

Kaylee shares what it was like trying to make sense of symptoms that didn't quite add up. Normal test results. A child who seemed okay one minute and not the next. And that moment when everything changed with one scan.

From there, their world shifted quickly. A brain bleed. A diagnosis of bacterial meningitis. Emergency surgery. A 40-day hospital stay. Kaylee talks about what it took to keep going through all of it, while also caring for a newborn and being away from her other child.

She also shares how she supported Kanessa through it all. Being honest about what was happening. Preparing her for procedures. Letting her ask questions. And leaning on Child Life in a way that made a huge difference for both of them.

If you've ever wondered if you're overreacting or if you should push for more answers, this episode will stay with you. Kaylee's story is a reminder to trust yourself and keep advocating.

This episode is sponsored by Gebauer PainEase®. We're so grateful for their support. To learn more about this product, visit their website.

This is our 300th episode, which feels pretty surreal. We're so grateful you're here.

This episode is sponsored by Gebauer PainEase®. We extend our sincere gratitude to Gebauer PainEase® for supporting this episode. To learn more about this product, visit their website.

Special Giveaway ☕️
Your support means so much to us, and we're truly grateful for this community. As a small thank you, we're offering a $10 Starbucks gift card to the first 20 listeners who leave a review. If the podcast has made an impact on you, we'd love to hear your thoughts. Simply screenshot your review and email it to podcast@childlifeoncall.com to claim your gift. Thank you for being part of this journey with us 💛

Resources & Ways to Connect

 Connect with Kaleigh on Instagram

Facebook Meningitis Support Group

 

Connect with Us

Medical information provided is not a substitute for professional advice—please consult your care team.

Keywords:
bacterial meningitis child story, pediatric brain hemorrhage, delayed diagnosis child illness, parenting through medical trauma, child life support hospital, pediatric emergency story, advocating for your child medical care, cochlear implant child, hearing loss after meningitis, navigating pediatric hospitalization, medical parent journey, trusting parental instincts


Hosted by Katie Taylor, a Certified Child Life Specialist, Inside the Children's Hospital is a quiet space for the often unspoken journey of pediatric illness. This podcast moves beyond the clinical to explore the human heart of the hospital, offering conversations that feel more like a shared cup of coffee in a waiting room than a formal interview. You'll hear directly from parents and caregivers who articulate the complex mix of fear, resilience, and love they experience, while pediatric nurses, doctors, and therapists provide their unique professional perspectives on fostering healing and normalcy. The discussions naturally delve into the practicalities of family life disrupted, the emotional weight carried by all involved, and the small, profound moments of hope that sustain people. It’s a resource for anyone connected to a child’s health challenge, whether you're a family member seeking solidarity, a friend looking to understand, or simply someone interested in the intersection of medicine and humanity. Each episode aims to validate the listener's own feelings, whether they are in the midst of a crisis or reflecting on one, by presenting these authentic narratives without sugarcoating yet always with profound compassion. Tune in to find a sense of community and a deeper appreciation for the delicate, powerful work happening within those walls.
Author: Language: English Episodes: 50

Inside the Children's Hospital
Podcast Episodes
Trust, Grief, and Loving Your Child Through Big Identity Changes [not-audio_url] [/not-audio_url]

Duration: 34:08
What happens when your child shares something that shifts the future you thought you understood? In this episode of Inside the Children's Hospital, Katie sits down with Kelly Kemp — certified child life specialist of mor…
Micro Preemie at 25 Weeks: A NICU Mom's Journey [not-audio_url] [/not-audio_url]

Duration: 43:09
This week's guest opens up about the shock of an emergency C-section at 25 weeks and 3 days, the fear of entering the NICU for the first time, and the powerful role Child Life Specialists played in supporting not only Vi…
Rare Lung Disease, Epilepsy and the Diagnostic Journey [not-audio_url] [/not-audio_url]

Duration: 49:28
When your child survives one medical emergency only to face another, parenting becomes a constant act of advocacy and courage. Today's guest joins us to share her daughter's journey with rare and complex medical conditio…
Severe Hemophilia: A Newborn, A Brain Bleed, and PICU Experience [not-audio_url] [/not-audio_url]

Duration: 33:42
When your newborn is healthy one moment and rushed to the PICU the next, life can change in an instant. Today's guest joins us to share her son's journey with severe hemophilia—from unexpected bleeding after a routine ci…
When Insurance Isn't Enough: A Parent's Type 1 Diabetes Story [not-audio_url] [/not-audio_url]

Duration: 56:46
When your child receives a new medical diagnosis, it can feel like the world shifts beneath your feet. Today's guest joins Katie Taylor to share her daughter's Type 1 Diabetes journey—from dismissing "textbook" symptoms…
New Diagnosis: What to Do When Your Child Gets Diagnosed [not-audio_url] [/not-audio_url]

Duration: 21:10
When your child receives a new medical diagnosis, it can feel like the world shifts beneath your feet. Here's how to move forward with clarity, support and connection, hosted by Katie Taylor and the Inside the Children's…
Welcome to Inside the Children's Hospital: What Listeners Can Expect [not-audio_url] [/not-audio_url]

Duration: 1:31
If your child is facing a diagnosis, procedure, or hospitalization — you're not alone. Inside the Children's Hospital brings you real stories from parents who've walked this path. Not medical advice, but the kind of hone…