Bridging Pharma and Patients in Neuroendocrine Cancer Care

Bridging Pharma and Patients in Neuroendocrine Cancer Care

Author: Neuroendocrine Cancer UK April 30, 2025 Duration: 22:11
🎙️ In this episode of the Not Just NE Cancer podcast, Neuroendocrine Cancer UK CEO and Co-Founder, Cathy Bouvier Ellis sits down with Tanya Hills, Global Patient Engagement Lead at Boehringer Ingelheim. Together, they explore: Common misconceptions about the pharmaceutical industryHow patient organisations and the industry can work collaborativelyHow effective these collaborations can be Tanya also highlights a current clinical trial led by Boehringer Ingelheim for Extrapulmonary Neuroendocr...

Navigating a diagnosis of Neuroendocrine Cancer or another rare cancer can feel isolating, but Neuroendocrine Cancer UK-Not Just NE Cancer Podcast exists to bridge that gap. Hosted by Catherine Bouvier, this series delves into the full spectrum of the journey, moving beyond medical definitions to the human heart of the experience. Each episode is built on real-life stories, offering genuine connection and practical wisdom you can use. You'll hear from patients, caregivers, and the professionals involved in care, covering ground from the shock of initial diagnosis and treatment options to long-term follow-up and the crucial maintenance of mental health. This podcast provides a space where questions are met with understanding and complex information is broken down with clarity. Produced by Neuroendocrine Cancer UK, the conversations are candid, compassionate, and focused on making the path ahead feel more manageable. It’s a resource for anyone seeking to feel less alone, find their footing, and gather insights that matter. Tune in for a blend of personal resilience and professional perspective that defines this essential listen.
Author: Language: en-gb Episodes: 48

The Invisible Cancer - Bringing Visibility to Neuroendocrine Cancer 
Podcast Episodes
Neuroendocrine Cancer - When The Nurse Becomes The Patient [not-audio_url] [/not-audio_url]

Duration: 52:14
In this episode, Catherine talks to Neuroendocrine Cancer Clinical Nurse Specialist, Debbie. In December 2021, Debbie's life took an unexpected turn when she was diagnosed with breast cancer. Debbie shares her experience…
Neuroendocrine Cancer - Pete's Story [not-audio_url] [/not-audio_url]

Duration: 22:01
In this episode Pete, Neuroendocrine Cancer patient and fundraiser shares his story. Pete talks to us about his diagnosis, the symptoms of Pancreatic Neuroendocrine Cancer and his experience of Radioligand Therapy (also…
Neuroendocrine Cancer - Finding Ways to Cope - Pain Control [not-audio_url] [/not-audio_url]

Duration: 5:49
Rambles with Sally - Insights from Neuroendocrine Cancer patient, Sally on living with Neuroendocrine Cancer and pain control. Further Support: Understanding Neuroendocrine CancerNewly DiagnosedLiving with Neuroendocrine…
Neuroendocrine Cancer - Perfect Moments [not-audio_url] [/not-audio_url]

Duration: 7:40
Rambles with Sally Sally, Neuroendocrine Cancer UK Ambassador, shares her remarkable insights on living with Neuroendocrine Cancer in this episode of "Rambles with Sally." Join us as Sally reveals the art of cherishing t…
Rambles with Sally - Sleep & Neuroendocrine Cancer [not-audio_url] [/not-audio_url]

Duration: 9:21
Insights from NCUK Ambassador, Sally on living with Neuroendocrine Cancer. In this episode NCUK Ambassador, Sally discusses useful tips for better sleep with fellow patient, Phil. Further support - https://www.neuroendoc…
Neuroendocrine Cancer - Mental Health Awareness Week [not-audio_url] [/not-audio_url]

Duration: 52:38
In this episode of Not Just NE Cancer, Cathy speaks to Kym Winters, founder and Director of Rare Minds about some of the emotional challenges those diagnosed and living with Neuroendocrine Cancer face. Kym also shares he…
Neuroendocrine Cancer Treatments - The patient experience [not-audio_url] [/not-audio_url]

Duration: 38:36
In this episode of Not Just NE Cancer, Cathy speaks to NCUK Ambassadors, Maxine and Simon all about treatments after their Neuroendocrine Cancer diagnosis. Click here to read all about treatments on the NCUK website Supp…
Carcinoid Heart Disease [not-audio_url] [/not-audio_url]

Duration: 31:56
In this episode of Not Just NE Cancer, Cathy travels to the Queen Elizabeth Hospital, Birmingham to speak to Cardiac Consultant, Professor Steeds, about Carcinoid Heart Disease. Find out more: Carcinoid Heart Disease Jus…