The Voices behind The Neuroendocrine Cancer 'Invisible Cancer' report

The Voices behind The Neuroendocrine Cancer 'Invisible Cancer' report

Author: Neuroendocrine Cancer UK April 15, 2026 Duration: 57:36
In the first episode of The Invisible Cancer podcast, we hear from the voices behind the Invisible Cancer Report, exploring why greater awareness and earlier diagnosis of neuroendocrine cancer are so important. Through honest and personal accounts, guests share their experiences of living with neuroendocrine cancer, including the challenges of delayed diagnosis and the impact this can have on their lives. The conversation also reflects on their involvement in shaping the report and why raisin...

Navigating a diagnosis of Neuroendocrine Cancer or another rare cancer can feel isolating, but Neuroendocrine Cancer UK-Not Just NE Cancer Podcast exists to bridge that gap. Hosted by Catherine Bouvier, this series delves into the full spectrum of the journey, moving beyond medical definitions to the human heart of the experience. Each episode is built on real-life stories, offering genuine connection and practical wisdom you can use. You'll hear from patients, caregivers, and the professionals involved in care, covering ground from the shock of initial diagnosis and treatment options to long-term follow-up and the crucial maintenance of mental health. This podcast provides a space where questions are met with understanding and complex information is broken down with clarity. Produced by Neuroendocrine Cancer UK, the conversations are candid, compassionate, and focused on making the path ahead feel more manageable. It’s a resource for anyone seeking to feel less alone, find their footing, and gather insights that matter. Tune in for a blend of personal resilience and professional perspective that defines this essential listen.
Author: Language: en-gb Episodes: 48

The Invisible Cancer - Bringing Visibility to Neuroendocrine Cancer 
Podcast Episodes
Dipping for Dave: Raising Awareness of Neuroendocrine Cancer [not-audio_url] [/not-audio_url]

Duration: 57:15
In this episode of the Not Just NE Cancer podcast, Cathy speaks to Ruth, the incredible fundraiser and founder behind 'Daily Dip 4 Dave'. Since October 2023, Ruth has taken a cold-water dip every single day, inspired by…
Bridging Pharma and Patients in Neuroendocrine Cancer Care [not-audio_url] [/not-audio_url]

Duration: 22:11
🎙️ In this episode of the Not Just NE Cancer podcast, Neuroendocrine Cancer UK CEO and Co-Founder, Cathy Bouvier Ellis sits down with Tanya Hills, Global Patient Engagement Lead at Boehringer Ingelheim. Together, they ex…
Fairylights & Flat Batteries - Kym Winter, CEO at Rareminds [not-audio_url] [/not-audio_url]

Duration: 43:19
In the final episode of the Not Just NE Cancer podcast of 2024, our host, Cathy, chats with Kym Winter, CEO, Founder and Director of Rareminds who some of our community may already know. In anticipation of the festive pe…
Neuroendocrine Cancer Treatments: Insights from Jane and Carolyn [not-audio_url] [/not-audio_url]

Duration: 45:14
In this episode of the Not Just NE Cancer podcast, Cathy speaks with Jane and Carolyn about their experiences with neuroendocrine cancer treatment. Jane discusses her journey with CAPTEM, PRRT and now four-weekly Lanreot…