49. Spinal muscular atrophy interview marks Rare Diseases Day


Author: Steve Brine & James Bethell February 24, 2025 Duration: 52:39
Podcast episode
49. Spinal muscular atrophy interview marks Rare Diseases Day

This week sees Rare Diseases Day 2025 and to mark the moment, Steve and James speak with SMA UK boss Giles Lomax about spinal muscular atrophy and how we have the power to save lives. The pair also consider what is happening with the Government's Ten Year Plan, a worrying new piece of research from CRUK and look ahead to the NHS Winter crisis of 2026 - discuss! You can get in touch with the team via podcast@stevebrine.com or find us on our social media channels.


Note: Steve has worked in an advisory role with organisations who have an interest in both SMA and newborn screening, but the opinions expressed in this podcast which he presents are his own.


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