Beyond just the Story | A Chronic Illness Documentary

Beyond just the Story | A Chronic Illness Documentary

Author: G-PACT non profit July 31, 2026 Duration: 40:38

What does it really take to create a documentary about chronic illness?

In this episode, Sam sits down with Lauren Keenan, Director of the film, to take you behind the scenes of this powerful chronic illness documentary. Together, they discuss the creative process, the emotional realities of filmmaking, and the deeply personal journey of telling authentic patient stories that capture life beyond a diagnosis.

From half-marathon training while living with chronic illness to navigating setbacks, vulnerability, and resilience, Sam and Lauren share what it takes to create a documentary that is both honest and impactful. Their conversation explores how storytelling can change perceptions of gastroparesis, invisible illness, or chronic pain, while highlighting the strength and humanity of the chronic illness community.

Creating a documentary about chronic illness is about far more than capturing footage; it's about building trust, embracing uncertainty, and giving patients the opportunity to tell their stories on their own terms. Sam and Lauren discuss the challenges of balancing filmmaking with chronic illness, why understanding your "why" is essential during difficult moments, and how authentic storytelling can educate, inspire, and create meaningful change.

If you're passionate about chronic illness awareness, patient advocacy, or documentary filmmaking, this episode offers a unique behind-the-scenes look at how these powerful stories are brought to life.



Hosted by two people navigating life with gastroparesis, Surviving out of Spite is a raw and real conversation from the G-PACT non-profit. This isn't a clinical lecture; it's the sound of two friends unpacking the daily reality of a chronic condition, finding humor in the absurd moments and solidarity in the shared struggles. You'll hear candid personal stories that range from frustrating to triumphant, alongside practical tips forged from lived experience. The dialogue covers everything from managing health and relationships to simply preserving your identity beyond a diagnosis. Tuning into this podcast feels like pulling up a chair to a kitchen table conversation where no topic is off-limits and laughter is considered essential medicine. It builds a community through audio, reminding anyone facing a similar journey that they are understood. Each episode explores the complex patient experience with honesty, aiming to inform, connect, and affirm that navigating life with gastroparesis is a story of resilience, often fueled by a bit of defiant spirit.
Author: Language: en-us Episodes: 50

Surviving out of Spite
Podcast Episodes
Episode 29: Hope in a Broken Digestive System [not-audio_url] [/not-audio_url]

Duration: 51:07
Gastroparesis isn’t just about digestion — it’s about identity, grief, resilience, and learning how to fight for yourself. In this episode, Sam and Dr. Eva Alsheik unpack the science behind gastroparesis, the mental heal…
Episode 28: When Voices Become a Movement [not-audio_url] [/not-audio_url]

Duration: 12:10
In this final episode of the year, Sam pulls back the curtain on what it really takes to grow a chronic illness community. From the early days of G-PACT to the powerful network it’s become today, she reflects on the wins…
Episode 27: The Missing Piece in GI Treatment [not-audio_url] [/not-audio_url]

Duration: 42:16
In this week's episode, Megan Riehl joins the show to break down the brain–gut connection and why it’s a physiological process, not a dismissal. We explore how stress and nervous system dysregulation directly affect GI f…
Episode 26: When Fitness isn't Built for Us [not-audio_url] [/not-audio_url]

Duration: 51:31
In this episode, Sam sits down with Kate Bochnewetch, a physical therapist and running/strength coach, for a conversation about living, moving and thriving with chronic illness. Drawing from her own journey with hEDS syn…
Episode 25: Empowering Patients through Nutrition [not-audio_url] [/not-audio_url]

Duration: 48:23
In this episode, we’re joined by Jennifer Akimoto. She’s a registered dietitian with 20 years of clinical nutrition experience, and today, we are talking about the world of blended tube feeding. Inspired by a patient’s d…