Inside EDS: A Doctor Who Lives It Talks Medicine, Advocacy & Care

Inside EDS: A Doctor Who Lives It Talks Medicine, Advocacy & Care

Author: G-PACT non profit June 3, 2026 Duration: 46:06

In this episode of Surviving Out of Spite, Sam sits down with Dr. Sarah Cohen Solomon for a deeply honest conversation about chronic illness, Ehlers-Danlos Syndrome (EDS), and what it really takes to build a more humane healthcare system.

Dr. Solomon brings a unique dual perspective as both a physician and a patient, offering insight into the lived reality of navigating chronic illness while practicing medicine. They talk about the complexities of individualized care, the importance of listening to patient concerns, and why curiosity, not assumptions, should guide clinical decision-making.

This episode is about shifting healthcare toward collaboration, where patients are not dismissed, but believed, supported, and involved in their own care decisions. It’s a call for a more compassionate, responsive, and patient-centered medical system.

If you’re living with chronic illness, supporting someone who is, or working in healthcare, this conversation offers grounded insight into how care can be improved through empathy, advocacy, and listening.



Hosted by two people navigating life with gastroparesis, Surviving out of Spite is a raw and real conversation from the G-PACT non-profit. This isn't a clinical lecture; it's the sound of two friends unpacking the daily reality of a chronic condition, finding humor in the absurd moments and solidarity in the shared struggles. You'll hear candid personal stories that range from frustrating to triumphant, alongside practical tips forged from lived experience. The dialogue covers everything from managing health and relationships to simply preserving your identity beyond a diagnosis. Tuning into this podcast feels like pulling up a chair to a kitchen table conversation where no topic is off-limits and laughter is considered essential medicine. It builds a community through audio, reminding anyone facing a similar journey that they are understood. Each episode explores the complex patient experience with honesty, aiming to inform, connect, and affirm that navigating life with gastroparesis is a story of resilience, often fueled by a bit of defiant spirit.
Author: Language: en-us Episodes: 50

Surviving out of Spite
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