Surviving out of Spite
What does it mean to be diagnosed with a serious heart condition at a young age, and then have to fight to be believed?
In this powerful conversation, Hannah shares her journey as a heart patient diagnosed with HCM and the realities of navigating a healthcare system that often overlooks young patients. She opens up about misdiagnosis, self-advocacy, and the emotional toll of living with a heart condition that doesn’t “look” sick.
Hannah also dives into the mission behind the nonprofit, HeartCharged, which is working to raise awareness about heart conditions in young people and push for better education within the medical community. Together, the conversation explores how social media has become a lifeline for patient connection, why advocacy matters, and what it will take for patient organizations to collaborate more effectively.
This conversation is for patients, advocates, caregivers, healthcare professionals, and anyone passionate about improving care for young people with chronic illnesses.
https://www.getheartcharged.org/
IG: @heartcharged