What Doctors Miss: HCM, Women’s Health, and Patient Voices

What Doctors Miss: HCM, Women’s Health, and Patient Voices

Author: G-PACT non profit February 11, 2026 Duration: 54:30

What does it mean to be diagnosed with a serious heart condition at a young age, and then have to fight to be believed?

In this powerful conversation, Hannah shares her journey as a heart patient diagnosed with HCM and the realities of navigating a healthcare system that often overlooks young patients. She opens up about misdiagnosis, self-advocacy, and the emotional toll of living with a heart condition that doesn’t “look” sick.

Hannah also dives into the mission behind the nonprofit, HeartCharged, which is working to raise awareness about heart conditions in young people and push for better education within the medical community. Together, the conversation explores how social media has become a lifeline for patient connection, why advocacy matters, and what it will take for patient organizations to collaborate more effectively.

This conversation is for patients, advocates, caregivers, healthcare professionals, and anyone passionate about improving care for young people with chronic illnesses. 


https://www.getheartcharged.org/

IG: @heartcharged


Hosted by two people navigating life with gastroparesis, Surviving out of Spite is a raw and real conversation from the G-PACT non-profit. This isn't a clinical lecture; it's the sound of two friends unpacking the daily reality of a chronic condition, finding humor in the absurd moments and solidarity in the shared struggles. You'll hear candid personal stories that range from frustrating to triumphant, alongside practical tips forged from lived experience. The dialogue covers everything from managing health and relationships to simply preserving your identity beyond a diagnosis. Tuning into this podcast feels like pulling up a chair to a kitchen table conversation where no topic is off-limits and laughter is considered essential medicine. It builds a community through audio, reminding anyone facing a similar journey that they are understood. Each episode explores the complex patient experience with honesty, aiming to inform, connect, and affirm that navigating life with gastroparesis is a story of resilience, often fueled by a bit of defiant spirit.
Author: Language: en-us Episodes: 44

Surviving out of Spite
Podcast Episodes
Episode 01. Welcome to the show! [not-audio_url] [/not-audio_url]

Duration: 34:08
In the very first episode of Surviving out of Spite, hosts Samantha and Levi share their personal journeys with gastroparesis, opening up about the highs, lows, and everything in between. From unexpected diagnoses to dai…