The POTScast

The POTScast

Author: Standing Up to POTS, Inc. Language: English Episodes: 100
Navigating life with a complex, often misunderstood condition like Postural Orthostatic Tachycardia Syndrome can feel isolating. The POTScast, brought to you by the team at Standing Up to POTS, Inc., exists to change that. Every week, this podcast creates a dedicated space for learning and connection, delving into POTS, Mast Cell Activation Syndrome (MCAS), and the broader landscape of chronic invisible illness. Rather than just clinical explanations, you’ll hear conversations focused on practical, real-world strategies for managing daily life. The discussions are built on a foundation of empowering patients with actionable information, from fitness adaptations and business accommodations to deeper medical insights and self-improvement techniques. Each month features interviews with leading specialists and advocates, offering clarity and hope. At its heart, this is about nurturing a supportive community, raising awareness, and affirming that if you are living with these conditions, you are not alone. Tune in for a blend of education, solidarity, and tangible skills aimed at helping you live better.
Episodes
Dr. Tania Dempsey on GLP-1s for MCAS, POTS and related conditions [not-audio_url] [/not-audio_url]

Duration: 41:53
This is a not-to-be-missed episode! Dr. Dempsey discusses the use of GLP-1 medications for MCAS, including her most recent observations and recommendations. This is a follow-up to Dr. Dempsey's free online GLP-1 Mastercl…
All about IV Infusions with Betsy Harmon, RN, CRNI, CPUI, VA-BC [not-audio_url] [/not-audio_url]

Duration: 59:02
Betsy Harmon, RN, CRNI, CPUI, VA-BC has been an infusion nurse for over 20 years and runs the Alaska Infusion Center in Anchorage, Alaska, where she oversees and administers all types of infusions to a wide variety of pa…
Elli (from ep 65) on new diagnoses and MALS surgery [not-audio_url] [/not-audio_url]

Duration: 17:30
Elli from episode 65 is back to share what she wishes she'd known sooner after her 2-year ordeal that eventually resulted in several new diagnoses and surgery for MALS (median arcuate ligament syndrome). You can find Ell…
The Long COVID Treatment Guide with Jen Curtin, MD and Charlie McCone [not-audio_url] [/not-audio_url]

Duration: 54:04
Dr. Jen Curtin is the Medical Director and Co-founder of RTHM Clinic, which specializes in complex chronic conditions via their clinic, telemedicine services, Intelligence platform, medication access program and other in…
Aryn on athletics, adapting and advocating for oneself [not-audio_url] [/not-audio_url]

Duration: 39:51
Aryn was a serious college athlete when her POTS developed, and in this episode she shares how she has adapted and how despite having world class cardiology care for her symptoms, her diagnosis would have been missed if…
Attorney Krysti Monaco on winning children's social security benefits [not-audio_url] [/not-audio_url]

Duration: 39:27
Krysti Monaco helps families apply for disability benefits when their children are too disabled to work. In this episode she describes the available programs, application process, challenges, pitfalls, important deadline…