The POTScast

The POTScast

Author: Standing Up to POTS, Inc. Language: English Episodes: 50
Navigating life with a complex, often misunderstood condition like Postural Orthostatic Tachycardia Syndrome can feel isolating. The POTScast, brought to you by the team at Standing Up to POTS, Inc., exists to change that. Every week, this podcast creates a dedicated space for learning and connection, delving into POTS, Mast Cell Activation Syndrome (MCAS), and the broader landscape of chronic invisible illness. Rather than just clinical explanations, you’ll hear conversations focused on practical, real-world strategies for managing daily life. The discussions are built on a foundation of empowering patients with actionable information, from fitness adaptations and business accommodations to deeper medical insights and self-improvement techniques. Each month features interviews with leading specialists and advocates, offering clarity and hope. At its heart, this is about nurturing a supportive community, raising awareness, and affirming that if you are living with these conditions, you are not alone. Tune in for a blend of education, solidarity, and tangible skills aimed at helping you live better.
Episodes
Nicole, The Autonomic Coach and news reporter from Hawaii [not-audio_url] [/not-audio_url]

Duration: 41:16
Nicole is a live morning news reporter (on her feet from 1am to 9am!) and horse lover in Hawaii who has dealt with type 1 diabetes, cyclic vomiting syndrome, POTS and more. In this episode Nicole describes her journey an…
Dr. Kamal Chemali on Music and Medicine [not-audio_url] [/not-audio_url]

Duration: 37:38
Dr. Kamal Chemali is an autonomic neurologist, Professor of Medicine and Director of the Autonomic Nervous system Program at Case Western Reserve University. He started studying the piano at age seven and today is a cons…
Dr. Tania Dempsey on GLP-1s for MCAS, POTS and related conditions [not-audio_url] [/not-audio_url]

Duration: 41:53
This is a not-to-be-missed episode! Dr. Dempsey discusses the use of GLP-1 medications for MCAS, including her most recent observations and recommendations. This is a follow-up to Dr. Dempsey's free online GLP-1 Mastercl…
All about IV Infusions with Betsy Harmon, RN, CRNI, CPUI, VA-BC [not-audio_url] [/not-audio_url]

Duration: 59:02
Betsy Harmon, RN, CRNI, CPUI, VA-BC has been an infusion nurse for over 20 years and runs the Alaska Infusion Center in Anchorage, Alaska, where she oversees and administers all types of infusions to a wide variety of pa…
Elli (from ep 65) on new diagnoses and MALS surgery [not-audio_url] [/not-audio_url]

Duration: 17:30
Elli from episode 65 is back to share what she wishes she'd known sooner after her 2-year ordeal that eventually resulted in several new diagnoses and surgery for MALS (median arcuate ligament syndrome). You can find Ell…