Elli (from ep 65) on new diagnoses and MALS surgery

Elli (from ep 65) on new diagnoses and MALS surgery

Author: Standing Up to POTS, Inc. April 25, 2026 Duration: 17:30
Elli from episode 65 is back to share what she wishes she'd known sooner after her 2-year ordeal that eventually resulted in several new diagnoses and surgery for MALS (median arcuate ligament syndrome).  You can find Elli on most social media at potsie.life. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

Navigating life with a complex, often misunderstood condition like Postural Orthostatic Tachycardia Syndrome can feel isolating. The POTScast, brought to you by the team at Standing Up to POTS, Inc., exists to change that. Every week, this podcast creates a dedicated space for learning and connection, delving into POTS, Mast Cell Activation Syndrome (MCAS), and the broader landscape of chronic invisible illness. Rather than just clinical explanations, you’ll hear conversations focused on practical, real-world strategies for managing daily life. The discussions are built on a foundation of empowering patients with actionable information, from fitness adaptations and business accommodations to deeper medical insights and self-improvement techniques. Each month features interviews with leading specialists and advocates, offering clarity and hope. At its heart, this is about nurturing a supportive community, raising awareness, and affirming that if you are living with these conditions, you are not alone. Tune in for a blend of education, solidarity, and tangible skills aimed at helping you live better.
Author: Language: English Episodes: 100

The POTScast
Podcast Episodes
Sarah from FL on life after COVID/POTS/MCAS [not-audio_url] [/not-audio_url]

Duration: 43:17
Sarah loved her life as a busy mom an accomplished professional dog groomer, but after COVID left her with new symptoms suggestive of the 'Trifecta' (POTS, MCAS, hEDS) she is needing to make a new game plan....one that d…
Dr. Dempsey on leading edge treatments she is finding helpful [not-audio_url] [/not-audio_url]

Duration: 1:04:43
One of the most common questions we get from listeners is about the novel treatments that Dr. Dempsey mentions, such as therapeutic plasmapheresis exchange (or apheresis), SOT, ozone therapy, UV light blood irradiation a…
New (free) AI intelligence platform for patients with Dr. Jen Curtin [not-audio_url] [/not-audio_url]

Duration: 51:50
Dr. Jennifer Curtin is Medical Director of the RTHM clinic and former complex chronic illness patient herself, after having ME/CFS while in medical school. Now her team has created the RTHM intelligence platform which us…