E208: Laura and Sharon published a book about Dysautonomia!

E208: Laura and Sharon published a book about Dysautonomia!

Author: Standing Up to POTS, Inc. June 5, 2024 Duration: 40:49
Laura and Sharon became great friends while they supported one another through dysautonomia and related conditions.  Between Laura's writing experience, Sharon's nursing career, and their joint ability to find the humor in every situation, they decided to help others by writing The Dysautonomia Diary:  Essays and Tips for Enjoying Life Despite Chronic Illness.  Their book has a foreword by Dr. Blair Grubb and is available here on Amazon.  If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

Navigating life with a complex, often misunderstood condition like Postural Orthostatic Tachycardia Syndrome can feel isolating. The POTScast, brought to you by the team at Standing Up to POTS, Inc., exists to change that. Every week, this podcast creates a dedicated space for learning and connection, delving into POTS, Mast Cell Activation Syndrome (MCAS), and the broader landscape of chronic invisible illness. Rather than just clinical explanations, you’ll hear conversations focused on practical, real-world strategies for managing daily life. The discussions are built on a foundation of empowering patients with actionable information, from fitness adaptations and business accommodations to deeper medical insights and self-improvement techniques. Each month features interviews with leading specialists and advocates, offering clarity and hope. At its heart, this is about nurturing a supportive community, raising awareness, and affirming that if you are living with these conditions, you are not alone. Tune in for a blend of education, solidarity, and tangible skills aimed at helping you live better.
Author: Language: English Episodes: 100

The POTScast
Podcast Episodes
Women’s sexual health with Dr. Anna Cabeca: Mast Cell Matters [not-audio_url] [/not-audio_url]

Duration: 47:05
Dr. Anna Cabeca started her career as a researcher and busy physician, until her own fertility issues drove her to search the world over for better solutions for women's sexual health. In this interview with Dr. Dempsey…
POTS Diaries with Reilly, nurse and world adventurer [not-audio_url] [/not-audio_url]

Duration: 34:51
Meet Reilly, a 29-year-old director of nursing from Northern British Columbia, Canada. Reilly shares insights into her life and career, details her experience with the healthcare system as both a provider and a patient,…
Hyperventilation in POTS with Jacquie Baker, PhD [not-audio_url] [/not-audio_url]

Duration: 36:38
Hyperventilation and POTS: Do POTS patients "breathe wrong?" Dr. Jacquie Baker explains the high-tech research studies performed in her (and Dr. Satish Raj's) lab to untangle the mechanistic causes and effects of hyperve…
Karen from rural Canada, both patient and healthcare practitioner [not-audio_url] [/not-audio_url]

Duration: 36:44
Karen is a healthcare professional in rural Canadian who had onset of confusing and scary symptoms six days after her third COVID shot. It took a year to figure out symptoms like "feeling drugged when upright, yet feelin…
Cerebral Blood Flow Findings with Marie-Claire Seeley, RN, PhD [not-audio_url] [/not-audio_url]

Duration: 47:48
POTS patients with cognitive dysfunction had SPECT imaging done to measure the blood flow to their brains and lead author, Marie-Claire Seeley, RN, PhD, discusses the dramatic findings. You can read the published article…
Four nutrition findings with Jill Brook, MA [not-audio_url] [/not-audio_url]

Duration: 35:30
Jill shares four nutrition findings from general nutrition (not done on POTS patients) that might still be of interest to POTS patients, as they have been shown to affect cognitive function, mood, pain and exercise toler…
Lily’s transition to career and adulting [not-audio_url] [/not-audio_url]

Duration: 39:48
Lily was our first POTS Diaries guest (Episode #2) as a college student with severe POTS. She's back to discuss how she navigated planning a POTS-friendly career, the job hunt, cross-country move, 2 hurricanes, and maint…