E220:S. founded the support organization she wished she’d had

E220:S. founded the support organization she wished she’d had

Author: Standing Up to POTS, Inc. August 27, 2024 Duration: 43:16
S. got POTS while becoming an occupational therapist and struggled through her graduate program, but now she reports having no more limitations than her friends and has founded the non-profit support organization that she wishes had been there for her.  It has helped over 600 girls internationally who live with chronic illness. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

Navigating life with a complex, often misunderstood condition like Postural Orthostatic Tachycardia Syndrome can feel isolating. The POTScast, brought to you by the team at Standing Up to POTS, Inc., exists to change that. Every week, this podcast creates a dedicated space for learning and connection, delving into POTS, Mast Cell Activation Syndrome (MCAS), and the broader landscape of chronic invisible illness. Rather than just clinical explanations, you’ll hear conversations focused on practical, real-world strategies for managing daily life. The discussions are built on a foundation of empowering patients with actionable information, from fitness adaptations and business accommodations to deeper medical insights and self-improvement techniques. Each month features interviews with leading specialists and advocates, offering clarity and hope. At its heart, this is about nurturing a supportive community, raising awareness, and affirming that if you are living with these conditions, you are not alone. Tune in for a blend of education, solidarity, and tangible skills aimed at helping you live better.
Author: Language: English Episodes: 100

The POTScast
Podcast Episodes
E236:Angela on MALS surgery, vascular compressions and more [not-audio_url] [/not-audio_url]

Duration: 46:29
Angela was healthy, busy, active and loved hiking and traveling before the cascade of syndromes arrived: POTS, MCAS, hEDS, MALS, May Thurner Syndrome, Nutcracker Syndromes, ME/CFS. Angela discusses how she worked to find…
E234:Hyperbaric Oxygen Therapy with Dr. Scott Sherr [not-audio_url] [/not-audio_url]

Duration: 42:41
Hyperbaric oxygen therapy (HBOT) can affect energy, healing, the central nervous system, immune system, GI and cognitive function and more. Dr. Scott Sherr is a Board-Certified Internal Medicine Physician and the directo…
E233:Methylene Blue for POTS with Dr. Scott Sherr [not-audio_url] [/not-audio_url]

Duration: 46:53
Can a blue dye that was the first drug ever approved by the FDA help POTS energy and brain fog? Dr. Scott Sherr is a Board-Certified Internal Medicine Physician, expert in health optimization, and COO of Troscriptions. I…
E231:Lumia tracks blood flow to the head with Daniel Lee [not-audio_url] [/not-audio_url]

Duration: 35:37
Engineer and tech founder Daniel Lee created the Lumia to be a personal wearable device that fits in the ear and measures blood flow to the head, along with several other measurements and a phone app. This allows POTS pa…
E230:POTS vs. Anxiety with Author/Advocate Christie Cox [not-audio_url] [/not-audio_url]

Duration: 39:45
Christie Cox is a best-selling author and patient advocate working to help others have an easier journey than she has had. Her latest article explains why POTS is often mistaken for anxiety, why this can lead to harm, an…
E228: 11th Annual Standing Up to POTS 5K/2K LIVE [not-audio_url] [/not-audio_url]

Duration: 53:34
Several POTS patients who traveled to Springfield, Ohio for the 11th Annual SUTP 5K/2K spoke with Jill live as they waited for the event to begin. These quick interviews are inspiring, and we hope that some of their tips…