Patrick Ussher, author of Understanding ME/CFS and Strategies for Healing

Patrick Ussher, author of Understanding ME/CFS and Strategies for Healing

Author: Standing Up to POTS, Inc. October 7, 2025 Duration: 1:07:08
Patrick Ussher is an author, advocate, educator and patient himself.  His book Understanding ME/CFS and Strategies for Healing explains current research and theory about a unifying explanation for ME/CFS and what that means for treatment strategies.  He explains the Mitodicure initiative to actually cure ME/CFS (pending funding), and also discusses some experimental (**i.e., not recommended:  consult YOUR doctor about what's right for you**) treatments that he has tried, including HELP Apheresis, HBOT (hyperbaric oxygen therapy), a carnivore diet and more. He also shares why he wrote a book about "psychogenic drinking" that -- among POTS and ME/CFS patients -- may not be psychogenic after all. Patrick's website is here. His YouTube channel is here. You can follow him here. To put your name into the hat for the book giveaway, please follow this link https://patrickscribe80.gumroad.com/l/jrfbq There you will be able to download a free sample from the book by inputting your email. Under ’name a fair price’, just input ‘0’ to get the sample for free.  This will also sign you up to Patrick’s newsletter but, if you would rather not subscribe to this, just indicate this clearly in the ’newsletter opt-out’ box. Three email addresses will be chosen at random two weeks after the podcast’s release date and winners will be contacted to arrange delivery of the book. You can also use the contact form on Patrick’s website and let him know you are entering the draw, if preferred. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

Navigating life with a complex, often misunderstood condition like Postural Orthostatic Tachycardia Syndrome can feel isolating. The POTScast, brought to you by the team at Standing Up to POTS, Inc., exists to change that. Every week, this podcast creates a dedicated space for learning and connection, delving into POTS, Mast Cell Activation Syndrome (MCAS), and the broader landscape of chronic invisible illness. Rather than just clinical explanations, you’ll hear conversations focused on practical, real-world strategies for managing daily life. The discussions are built on a foundation of empowering patients with actionable information, from fitness adaptations and business accommodations to deeper medical insights and self-improvement techniques. Each month features interviews with leading specialists and advocates, offering clarity and hope. At its heart, this is about nurturing a supportive community, raising awareness, and affirming that if you are living with these conditions, you are not alone. Tune in for a blend of education, solidarity, and tangible skills aimed at helping you live better.
Author: Language: English Episodes: 100

The POTScast
Podcast Episodes
Dr. Jeffrey Boris on the genetic landscape of POTS [not-audio_url] [/not-audio_url]

Duration: 45:53
Dr. Boris is a Pediatric Cardiologist, Pediatrician, and leading expert on pediatric POTS. Here he explains his team's new findings about the genetic signals found in pediatric POTS patients: What they found, what this m…
12th Annual 5k/2k Invitation [not-audio_url] [/not-audio_url]

Duration: 1:12
Please join us in Going The Distance for POTS Research by participating in our 12th annual 5k/2k event, which can be done virtually or in person at the Wittenberg campus in Springfield, OH. More information and registrat…
POTS Diaries with Mackenzie from Massachusetts [not-audio_url] [/not-audio_url]

Duration: 26:08
Mackenzie from Massachusetts enjoys all kinds of artistic pursuits including writing and illustrating her own children's book. In this episode she describes her journey, including how a TikTok video helped her discover a…
MCAS symptoms “down there” with Dr. Tania Dempsey [not-audio_url] [/not-audio_url]

Duration: 50:08
MCAS doesn't ignore the nether-regions, so in this episode, Dr. Dempsey discusses symptoms and treatments in the genitourinary and surrounding areas, including some novel uses of antihistamines and mast cell stabilizers,…
Bria from Wales, a professional patient rights advocate [not-audio_url] [/not-audio_url]

Duration: 45:38
Bria started having symptoms in college, as an art and theater major, and told her doctor she suspected POTS. It still took her 8 more years to get a formal diagnosis. Bria is still looking for better solutions and answe…
Dr. Asad Khan on long COVID, micro-clots and more [not-audio_url] [/not-audio_url]

Duration: 1:09:29
Dr. Asad Khan was a pulmonologist on the front lines of COVID in Manchester England when he became a long COVID patient himself. Now retired due to chronic illness, he is a leader in patient advocacy and has contributed…
POTS Diaries with Randi:  Surgical nurse, stoic and survivor [not-audio_url] [/not-audio_url]

Duration: 30:04
Having POTS, myocarditis, COVID and a heart attack right before your 40th birthday is not for the faint of heart, but Randi is a smart, strong, stoic surgical nurse who tells us all about it and more in this episode. If…
Kai, on living with profound ME/CFS [not-audio_url] [/not-audio_url]

Duration: 46:42
Kai has severe ME/CFS, and is using precious energy for this episode to help us understand what life is like with profound energy limitations: what an average day is like, the price paid for doing basic activities, what…