Patrick Ussher, author of Understanding ME/CFS and Strategies for Healing

Patrick Ussher, author of Understanding ME/CFS and Strategies for Healing

Author: Standing Up to POTS, Inc. October 7, 2025 Duration: 1:07:08
Patrick Ussher is an author, advocate, educator and patient himself.  His book Understanding ME/CFS and Strategies for Healing explains current research and theory about a unifying explanation for ME/CFS and what that means for treatment strategies.  He explains the Mitodicure initiative to actually cure ME/CFS (pending funding), and also discusses some experimental (**i.e., not recommended:  consult YOUR doctor about what's right for you**) treatments that he has tried, including HELP Apheresis, HBOT (hyperbaric oxygen therapy), a carnivore diet and more. He also shares why he wrote a book about "psychogenic drinking" that -- among POTS and ME/CFS patients -- may not be psychogenic after all. Patrick's website is here. His YouTube channel is here. You can follow him here. To put your name into the hat for the book giveaway, please follow this link https://patrickscribe80.gumroad.com/l/jrfbq There you will be able to download a free sample from the book by inputting your email. Under ’name a fair price’, just input ‘0’ to get the sample for free.  This will also sign you up to Patrick’s newsletter but, if you would rather not subscribe to this, just indicate this clearly in the ’newsletter opt-out’ box. Three email addresses will be chosen at random two weeks after the podcast’s release date and winners will be contacted to arrange delivery of the book. You can also use the contact form on Patrick’s website and let him know you are entering the draw, if preferred. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

Navigating life with a complex, often misunderstood condition like Postural Orthostatic Tachycardia Syndrome can feel isolating. The POTScast, brought to you by the team at Standing Up to POTS, Inc., exists to change that. Every week, this podcast creates a dedicated space for learning and connection, delving into POTS, Mast Cell Activation Syndrome (MCAS), and the broader landscape of chronic invisible illness. Rather than just clinical explanations, you’ll hear conversations focused on practical, real-world strategies for managing daily life. The discussions are built on a foundation of empowering patients with actionable information, from fitness adaptations and business accommodations to deeper medical insights and self-improvement techniques. Each month features interviews with leading specialists and advocates, offering clarity and hope. At its heart, this is about nurturing a supportive community, raising awareness, and affirming that if you are living with these conditions, you are not alone. Tune in for a blend of education, solidarity, and tangible skills aimed at helping you live better.
Author: Language: English Episodes: 100

The POTScast
Podcast Episodes
E236:Angela on MALS surgery, vascular compressions and more [not-audio_url] [/not-audio_url]

Duration: 46:29
Angela was healthy, busy, active and loved hiking and traveling before the cascade of syndromes arrived: POTS, MCAS, hEDS, MALS, May Thurner Syndrome, Nutcracker Syndromes, ME/CFS. Angela discusses how she worked to find…
E234:Hyperbaric Oxygen Therapy with Dr. Scott Sherr [not-audio_url] [/not-audio_url]

Duration: 42:41
Hyperbaric oxygen therapy (HBOT) can affect energy, healing, the central nervous system, immune system, GI and cognitive function and more. Dr. Scott Sherr is a Board-Certified Internal Medicine Physician and the directo…
E233:Methylene Blue for POTS with Dr. Scott Sherr [not-audio_url] [/not-audio_url]

Duration: 46:53
Can a blue dye that was the first drug ever approved by the FDA help POTS energy and brain fog? Dr. Scott Sherr is a Board-Certified Internal Medicine Physician, expert in health optimization, and COO of Troscriptions. I…
E231:Lumia tracks blood flow to the head with Daniel Lee [not-audio_url] [/not-audio_url]

Duration: 35:37
Engineer and tech founder Daniel Lee created the Lumia to be a personal wearable device that fits in the ear and measures blood flow to the head, along with several other measurements and a phone app. This allows POTS pa…
E230:POTS vs. Anxiety with Author/Advocate Christie Cox [not-audio_url] [/not-audio_url]

Duration: 39:45
Christie Cox is a best-selling author and patient advocate working to help others have an easier journey than she has had. Her latest article explains why POTS is often mistaken for anxiety, why this can lead to harm, an…
E228: 11th Annual Standing Up to POTS 5K/2K LIVE [not-audio_url] [/not-audio_url]

Duration: 53:34
Several POTS patients who traveled to Springfield, Ohio for the 11th Annual SUTP 5K/2K spoke with Jill live as they waited for the event to begin. These quick interviews are inspiring, and we hope that some of their tips…
E227:Dr. Cathy Pederson on Travel Tips with POTS [not-audio_url] [/not-audio_url]

Duration: 52:54
Dr. Cathy Pederson shares numerous practical tips for making travel easier for people with POTS, many of which she has tested in her own family's extensive world travels with severe POTS and related conditions. If you li…