Patrick Ussher, author of Understanding ME/CFS and Strategies for Healing

Patrick Ussher, author of Understanding ME/CFS and Strategies for Healing

Author: Standing Up to POTS, Inc. October 7, 2025 Duration: 1:07:08
Patrick Ussher is an author, advocate, educator and patient himself.  His book Understanding ME/CFS and Strategies for Healing explains current research and theory about a unifying explanation for ME/CFS and what that means for treatment strategies.  He explains the Mitodicure initiative to actually cure ME/CFS (pending funding), and also discusses some experimental (**i.e., not recommended:  consult YOUR doctor about what's right for you**) treatments that he has tried, including HELP Apheresis, HBOT (hyperbaric oxygen therapy), a carnivore diet and more. He also shares why he wrote a book about "psychogenic drinking" that -- among POTS and ME/CFS patients -- may not be psychogenic after all. Patrick's website is here. His YouTube channel is here. You can follow him here. To put your name into the hat for the book giveaway, please follow this link https://patrickscribe80.gumroad.com/l/jrfbq There you will be able to download a free sample from the book by inputting your email. Under ’name a fair price’, just input ‘0’ to get the sample for free.  This will also sign you up to Patrick’s newsletter but, if you would rather not subscribe to this, just indicate this clearly in the ’newsletter opt-out’ box. Three email addresses will be chosen at random two weeks after the podcast’s release date and winners will be contacted to arrange delivery of the book. You can also use the contact form on Patrick’s website and let him know you are entering the draw, if preferred. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

Navigating life with a complex, often misunderstood condition like Postural Orthostatic Tachycardia Syndrome can feel isolating. The POTScast, brought to you by the team at Standing Up to POTS, Inc., exists to change that. Every week, this podcast creates a dedicated space for learning and connection, delving into POTS, Mast Cell Activation Syndrome (MCAS), and the broader landscape of chronic invisible illness. Rather than just clinical explanations, you’ll hear conversations focused on practical, real-world strategies for managing daily life. The discussions are built on a foundation of empowering patients with actionable information, from fitness adaptations and business accommodations to deeper medical insights and self-improvement techniques. Each month features interviews with leading specialists and advocates, offering clarity and hope. At its heart, this is about nurturing a supportive community, raising awareness, and affirming that if you are living with these conditions, you are not alone. Tune in for a blend of education, solidarity, and tangible skills aimed at helping you live better.
Author: Language: English Episodes: 100

The POTScast
Podcast Episodes
E226:Molly from VA has 2 children with POTS [not-audio_url] [/not-audio_url]

Duration: 42:49
Molly's life has changed dramatically since two of her three children developed POTS - at different times, from different triggers and with different symptoms and severity. Hear her story, insights and advice in this epi…
E224:Dr. Dempsey on Mold/Mycotoxin Illness: Mast Cell Matters [not-audio_url] [/not-audio_url]

Duration: 45:27
Dr. Dempsey explains the facts on mold as a trigger for mast cells, including symptoms, preferred tests, treatments, resources for remediation and expectations for recovery. This is a not-to-be-missed episode since -- as…
E223:Nutrition for brain health with Erik Reis, DC, DACNB, CBIS [not-audio_url] [/not-audio_url]

Duration: 47:39
Dr. Erik Reis is a Doctor of Chiropractic Medicine, Board-Certified Chiropractic Neurologist, Certified Brain Injury Specialist, past brain injury patient himself, and founder of The Neural Connection in Minneapolis, a c…
E222:Jess from Louisiana [not-audio_url] [/not-audio_url]

Duration: 41:15
Jess was a busy, active student and essential worker as a medical case worker during COVID, and then her bout with COVID resulted in... hell. Among many other symptoms, one point she could barely even talk. But with tons…
E220:S. founded the support organization she wished she’d had [not-audio_url] [/not-audio_url]

Duration: 43:16
S. got POTS while becoming an occupational therapist and struggled through her graduate program, but now she reports having no more limitations than her friends and has founded the non-profit support organization that sh…
E219:Hope for neurologic pain with Katinka van der Merwe, DC [not-audio_url] [/not-audio_url]

Duration: 33:43
Dr. Katinka is a chiropractor in Arkansas dedicated to the treatment of neurological pain, a particularly stubborn type of chronic pain often seen in POTS, EDS, fibromyalgia, and CRPS. Dr. K leaves no stone unturned to t…
E217:Antonia from Virginia [not-audio_url] [/not-audio_url]

Duration: 37:49
Antonia's fast-paced life as a video/TV producer got a shock starting 10 days after her first COVID shot, but don't miss this episode to hear how she is still producing, finding silver linings, and having some hopeful ex…