The Long COVID Treatment Guide with Jen Curtin, MD and Charlie McCone

The Long COVID Treatment Guide with Jen Curtin, MD and Charlie McCone

Author: Standing Up to POTS, Inc. April 19, 2026 Duration: 54:04
Dr. Jen Curtin is the Medical Director and Co-founder of RTHM Clinic, which specializes in complex chronic conditions via their clinic, telemedicine services, Intelligence platform, medication access program and other innovative services. She is also a former complex chronic illness patient herself.  Charlie McCone is a San Francisco based Long Covid patient advocate and non-profit professional with a background in marketing, communications, fundraising, and organizing. He has worked in the fields of HIV/AIDS, environmental and urban planning, and political campaigns. He is a member of the Patient-Led Research Collaborative and his Long Covid advocacy efforts have been featured in the Washington Post, The Atlantic, TIME and PBS. He has also written pieces featured in The Guardian, San Francisco Chronicle, and STAT News.  Together their teams have brought us the Long COVID Treatment Guide, which summarizes efficacy findings on 18 drugs, 5 supplements, 4 lifestyle approaches and 2 Medical procedures that were studied by the Harvard/Stanford TREATME project, patient surveys or other studies of treatments for Long COVID.  The idea behind the Guide is to facilitate conversations between patients and practitioners about pototential Long COVID treatments, while we wait for larger, more robust studies to come.  Dr. Curtin and Charlie also give updates on other exciting projects in the works at their organizations. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

Navigating life with a complex, often misunderstood condition like Postural Orthostatic Tachycardia Syndrome can feel isolating. The POTScast, brought to you by the team at Standing Up to POTS, Inc., exists to change that. Every week, this podcast creates a dedicated space for learning and connection, delving into POTS, Mast Cell Activation Syndrome (MCAS), and the broader landscape of chronic invisible illness. Rather than just clinical explanations, you’ll hear conversations focused on practical, real-world strategies for managing daily life. The discussions are built on a foundation of empowering patients with actionable information, from fitness adaptations and business accommodations to deeper medical insights and self-improvement techniques. Each month features interviews with leading specialists and advocates, offering clarity and hope. At its heart, this is about nurturing a supportive community, raising awareness, and affirming that if you are living with these conditions, you are not alone. Tune in for a blend of education, solidarity, and tangible skills aimed at helping you live better.
Author: Language: English Episodes: 100

The POTScast
Podcast Episodes
Clare on being in law school with seizures and POTS [not-audio_url] [/not-audio_url]

Duration: 38:42
Clare is a law student who has a genetic condition that causes epileptic seizures, which may have ultimately led to POTS. She is unfortunately highly experienced in losing consciousness. But she is still rocking law scho…
Alici’a, a nauseous, resilient, animal-lover [not-audio_url] [/not-audio_url]

Duration: 32:34
Alici'a has spent a LOT of time hugging garbage pails, due to extreme nausea, and she did not get the support she hoped from her school or insurance company, but that didn't keep her from figuring out how to graduate hig…
Caitlyn wrote a book! [not-audio_url] [/not-audio_url]

Duration: 36:42
Caitlyn was a 4th grade teacher, mom, group fitness instructor and general ball of energy until she got Mononucleosis. Faced with all sorts of challenges, including losing relationships because her health was "too much",…
Biological Sex Differences in POTS with Marie-Claire Seeley, RN, PhD [not-audio_url] [/not-audio_url]

Duration: 17:43
Dr. Marie-Claire Seeley explains new published findings from the Australian POTS Registry, looking at sex differences in symptoms, care seeking, diagnostic delay, and other parts of the patient journey. You can read the…
Invitation to DysCourse, presented by The Dysautonomia Project [not-audio_url] [/not-audio_url]

Duration: 9:13
The DysCourse event is presented by The Dysautonomia Project. It is 100% free and is intended to provide practical strategies, information and community to patients and caregivers. Hope to see you there!
POTS Diaries with Sam, sharing her POTS and seizures on TikTok [not-audio_url] [/not-audio_url]

Duration: 37:51
Sam was enjoying a post-graduation road trip when a series of unlucky medical issues left her with POTS including non-epileptic seizures. Although she still faces new challenges (MALS this time), Sam is still smiling, op…
Women’s sexual health with Dr. Anna Cabeca: Mast Cell Matters [not-audio_url] [/not-audio_url]

Duration: 47:05
Dr. Anna Cabeca started her career as a researcher and busy physician, until her own fertility issues drove her to search the world over for better solutions for women's sexual health. In this interview with Dr. Dempsey…