Invitation to DysCourse, presented by The Dysautonomia Project

Invitation to DysCourse, presented by The Dysautonomia Project

Author: Standing Up to POTS, Inc. May 19, 2025 Duration: 9:13
The DysCourse event is presented by The Dysautonomia Project.  It is 100% free and is intended to provide practical strategies, information and community to patients and caregivers.  Hope to see you there!

Navigating life with a complex, often misunderstood condition like Postural Orthostatic Tachycardia Syndrome can feel isolating. The POTScast, brought to you by the team at Standing Up to POTS, Inc., exists to change that. Every week, this podcast creates a dedicated space for learning and connection, delving into POTS, Mast Cell Activation Syndrome (MCAS), and the broader landscape of chronic invisible illness. Rather than just clinical explanations, you’ll hear conversations focused on practical, real-world strategies for managing daily life. The discussions are built on a foundation of empowering patients with actionable information, from fitness adaptations and business accommodations to deeper medical insights and self-improvement techniques. Each month features interviews with leading specialists and advocates, offering clarity and hope. At its heart, this is about nurturing a supportive community, raising awareness, and affirming that if you are living with these conditions, you are not alone. Tune in for a blend of education, solidarity, and tangible skills aimed at helping you live better.
Author: Language: English Episodes: 100

The POTScast
Podcast Episodes
Elizabeth on her comeback and book: The Toll it Took [not-audio_url] [/not-audio_url]

Duration: 34:41
Elizabeth was a teen athlete when she first became bed bound with POTS and several other conditions including narcolepsy, epilepsy and gastroparesis. After 5 years of struggling to be heard or helped, and wondering if th…
Excessive sleep, fatigue and insomnia in POTS WITH Dr. Kirti Sivakoti [not-audio_url] [/not-audio_url]

Duration: 44:52
Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Director of the Pain and Aut…
Julie on the lengths she had to go to for recovery [not-audio_url] [/not-audio_url]

Duration: 45:05
Julie's recovery from POTS and other serious conditions involved an epic tale of sheer determination, next-level advocacy, some unconventional treatments (which we are not endorsing: talk to YOUR doctor about what is rig…
Dr. Dempsey’s cutting edge treatments (part 2) - Mast Cell Matters [not-audio_url] [/not-audio_url]

Duration: 47:24
Dr. Dempsey is always looking for new therapies that may help her complex patients. In this episode Dr. Dempsey discusses how she incorporates treatments with Methylene Blue, peptides, and the Nanovi breathing device. Fo…
Maggie on being both patient and Mental Health Therapist [not-audio_url] [/not-audio_url]

Duration: 36:36
Maggie was 14 when she started passing out regularly, and she still does occasionally, but that didn't stop her from getting back to school, completing graduate work and becoming a Mental Health Therapist. Maggie shares…
Dr. Casey Kelley on Mast Cell Matters [not-audio_url] [/not-audio_url]

Duration: 40:09
Dr. Casey Kelley is Board Certified in family and integrative medicine, teaches on the faculty of the Northwestern Medical School, and her care is informed by her own past experience having complex chronic invisible illn…
Sophie on life after severe COVID [not-audio_url] [/not-audio_url]

Duration: 41:40
Surviving severe COVID was just beginning of Sophie's health adventure. She discusses her unexpected COVID-related medical challenges, new job and living situation, the stenting procedure that helped (but not as much as…
Attorney Nancy Cavey on disability benefits for POTS/dysautonomia [not-audio_url] [/not-audio_url]

Duration: 42:22
Attorney Nancy Cavey has spent 39 years representing people with disabilities all over the U.S., and is an expert in helping people qualify based on POTS, MCAS, hEDS and other invisible illness. In this episode she descr…