Invitation to DysCourse, presented by The Dysautonomia Project

Invitation to DysCourse, presented by The Dysautonomia Project

Author: Standing Up to POTS, Inc. May 19, 2025 Duration: 9:13
The DysCourse event is presented by The Dysautonomia Project.  It is 100% free and is intended to provide practical strategies, information and community to patients and caregivers.  Hope to see you there!

Navigating life with a complex, often misunderstood condition like Postural Orthostatic Tachycardia Syndrome can feel isolating. The POTScast, brought to you by the team at Standing Up to POTS, Inc., exists to change that. Every week, this podcast creates a dedicated space for learning and connection, delving into POTS, Mast Cell Activation Syndrome (MCAS), and the broader landscape of chronic invisible illness. Rather than just clinical explanations, you’ll hear conversations focused on practical, real-world strategies for managing daily life. The discussions are built on a foundation of empowering patients with actionable information, from fitness adaptations and business accommodations to deeper medical insights and self-improvement techniques. Each month features interviews with leading specialists and advocates, offering clarity and hope. At its heart, this is about nurturing a supportive community, raising awareness, and affirming that if you are living with these conditions, you are not alone. Tune in for a blend of education, solidarity, and tangible skills aimed at helping you live better.
Author: Language: English Episodes: 100

The POTScast
Podcast Episodes
Tristan, from hiking, skating and EMT training to a looong wait [not-audio_url] [/not-audio_url]

Duration: 36:37
Tristan was an avid hiker, skate boarder and EMT-in-training when his world suddenly started spinning. Although his doctor diagnosed POTS and referred him to a top specialist, he has been waiting two years for that appoi…
Kirti Sivakoti, MD, pediatric dysautonomia and complex illness expert [not-audio_url] [/not-audio_url]

Duration: 46:34
Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Director of the Pain and Aut…
Taylor’s pleasure cruise that turned into another journey [not-audio_url] [/not-audio_url]

Duration: 34:28
Taylor caught COVID on a pleasure cruise and life has been pretty different ever since, but she is doing everything in her power to regain function and wellness, including going to top institutions and adding a service d…