Invitation to DysCourse, presented by The Dysautonomia Project

Invitation to DysCourse, presented by The Dysautonomia Project

Author: Standing Up to POTS, Inc. May 19, 2025 Duration: 9:13
The DysCourse event is presented by The Dysautonomia Project.  It is 100% free and is intended to provide practical strategies, information and community to patients and caregivers.  Hope to see you there!

Navigating life with a complex, often misunderstood condition like Postural Orthostatic Tachycardia Syndrome can feel isolating. The POTScast, brought to you by the team at Standing Up to POTS, Inc., exists to change that. Every week, this podcast creates a dedicated space for learning and connection, delving into POTS, Mast Cell Activation Syndrome (MCAS), and the broader landscape of chronic invisible illness. Rather than just clinical explanations, you’ll hear conversations focused on practical, real-world strategies for managing daily life. The discussions are built on a foundation of empowering patients with actionable information, from fitness adaptations and business accommodations to deeper medical insights and self-improvement techniques. Each month features interviews with leading specialists and advocates, offering clarity and hope. At its heart, this is about nurturing a supportive community, raising awareness, and affirming that if you are living with these conditions, you are not alone. Tune in for a blend of education, solidarity, and tangible skills aimed at helping you live better.
Author: Language: English Episodes: 100

The POTScast
Podcast Episodes
Dr. Jeffrey Boris on the genetic landscape of POTS [not-audio_url] [/not-audio_url]

Duration: 45:53
Dr. Boris is a Pediatric Cardiologist, Pediatrician, and leading expert on pediatric POTS. Here he explains his team's new findings about the genetic signals found in pediatric POTS patients: What they found, what this m…
12th Annual 5k/2k Invitation [not-audio_url] [/not-audio_url]

Duration: 1:12
Please join us in Going The Distance for POTS Research by participating in our 12th annual 5k/2k event, which can be done virtually or in person at the Wittenberg campus in Springfield, OH. More information and registrat…
POTS Diaries with Mackenzie from Massachusetts [not-audio_url] [/not-audio_url]

Duration: 26:08
Mackenzie from Massachusetts enjoys all kinds of artistic pursuits including writing and illustrating her own children's book. In this episode she describes her journey, including how a TikTok video helped her discover a…
MCAS symptoms “down there” with Dr. Tania Dempsey [not-audio_url] [/not-audio_url]

Duration: 50:08
MCAS doesn't ignore the nether-regions, so in this episode, Dr. Dempsey discusses symptoms and treatments in the genitourinary and surrounding areas, including some novel uses of antihistamines and mast cell stabilizers,…
Bria from Wales, a professional patient rights advocate [not-audio_url] [/not-audio_url]

Duration: 45:38
Bria started having symptoms in college, as an art and theater major, and told her doctor she suspected POTS. It still took her 8 more years to get a formal diagnosis. Bria is still looking for better solutions and answe…
Dr. Asad Khan on long COVID, micro-clots and more [not-audio_url] [/not-audio_url]

Duration: 1:09:29
Dr. Asad Khan was a pulmonologist on the front lines of COVID in Manchester England when he became a long COVID patient himself. Now retired due to chronic illness, he is a leader in patient advocacy and has contributed…
POTS Diaries with Randi:  Surgical nurse, stoic and survivor [not-audio_url] [/not-audio_url]

Duration: 30:04
Having POTS, myocarditis, COVID and a heart attack right before your 40th birthday is not for the faint of heart, but Randi is a smart, strong, stoic surgical nurse who tells us all about it and more in this episode. If…